Chris Kinchlea is a blogger, speaker, and patient parent advocate for kids with SJIA and other autoinflammatory diseases.
A heart for rare kids.
Recent Posts
- Inviting our kids to their doctors’ appointments
An interesting thing happened at my son’s last hospital appointment. It’s important to know that my eight-year-old isn’t like all […] - When being normal hurts – Stages of Grief in Chronic pain kids.This week, with it being back to school, I have found myself talking to several patients and parent caregivers of […]
- When your label is a Question Mark : When ‘Undifferentiated’ is part of your diagnosis.
The term undifferentiated means : not divided or able to be divided into different elements, types, etc. My 7-year-old little […] - Can a story change our healthcare system? Using narrative to promote change
The other day at the dinner table Daniel thought it would be fun to count the number of doctors that […] - Autoinflammatory Mom – Living with a chronically aching heart.
I think the memory of the moment you become a parent is one that sticks with us forever. No matter […]