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Sometimes days are significant, and for me today was one. I lay snuggled up to my little boy as he was falling asleep again just as I have what feels like a million times before. But as he lay their so peacefully I can’t help but recall those times that are starting to feel like […]
Ok so as promised, here is part two of this week’s adventure. Daniel and I are sitting in the emergency room waiting to be seen: he has missed his medication and as a result is in the midst of a full blown flare-he has high fever, arthritis, pain. The doctors do his lab work and […]
It’s been almost a year since I have sat down to write a post about Daniel. The truth is up until most recently its been a beautifully quiet year. Daniel and Gwen are growing so much and they keep us on our toes everyday. Daniel has been enjoying a mostly normal life this year, with […]