Praying the whole way there

Ok so as promised, here is part two of this week’s adventure. Daniel and I are sitting in the emergency room waiting to be seen: he has missed his medication and as a result is in the midst of a full blown flare-he has high fever, arthritis, pain. The doctors do his lab work and […]

Quick a Bunny

It’s been almost a year since I have sat down to write a post about Daniel. The truth is up until most recently its been a beautifully quiet year. Daniel and Gwen are growing so much and they keep us on our toes everyday. Daniel has been enjoying a mostly normal life this year, with […]

The “F” Word

We have an “F” word in our house–to us it’s probably worse than the real “F” word because it means having one of “those” days. The F word to us is “fever”. When we hear or see or come in contact with fever it’s one of those situations where we high tail it and run, […]

Welcome to our Fun House – pt.1

So it’s been about 6 months since you have heard from Daniel and the Kinchlea family–it’s high time for an update. First, I want to say our beautiful baby girl is growing so much and the love between her and Daniel is so special. When I was growing up, my family and I lived near […]

Welcome to our Fun House – pt. 2

Day to day, we’re making it through, though sometimes it has been difficult. Will’s vacation days at work were all used up earlier in the year, so the last 6 months I have found myself often sitting in pediatric oncology or a doctors office waiting for blood work and appointments with a 2 year-old, an […]

A Summer of Answered Prayers

Hello All, so it has probably felt like a while since you have received an update from the Kinchlea family so I thought it was high time I reconnect with you all. We have received a wonderful summer of peace. We know that is a clear result of your constant prayers, We have certainly had […]

Waiting Game – Daniel Syndrome

I am realizing it has been a while since I last posted, and I am sorry I haven’t kept up with it as much as I really wanted to. The truth is the further along in my pregnancy, the more exhausted I am, and the less energy or brain power I have after Daniel goes […]

Living with Dexter

I wanted to share a little more in depth what happened following our stay in Toronto, so as I previously mentioned Daniel (and Will and I) were discharged from Sick Kids on February 14th. We returned to work, daycare etc. and Daniel continued on the steroid treatment as well as his regular dose of anakinra […]

Sick Kids – Part 4: Going Home

I thought this was an appropriate evening to sit down and right my next post, mostly because I am feeling somewhat emotional – so bare with me if there is some ranting, but also because I wanted to share what ‘going home’ means for us. We were thrilled when the doctors told us that we […]

Our Stay at Sick Kids (Part 3): Treatment

So, when I say Daniel began to improve within 24 hours of being on treatment, what I meant by that is clinically he began to get better, he was placed on a daily dose of a protein injection known as anakinra to treat his unknown auto inflammatory disorder. The doctors confirmed that he does in […]